Accrington Stanley Community Trust were proud to support a recent bucket collection alongside Riley and Olly to help raise vital funds for Olly’s life-changing treatment journey. The total raised from Saturday’s collection at the Accrington Stanley v Shrewsbury game was £238!
Olly is a truly remarkable young boy living with a rare genetic condition called SYNGAP1, which has resulted in epilepsy, autism, a learning disability and traits of cerebral palsy. He also has cilia dystrophy and is non-verbal. Despite the challenges he faces every day, Olly is known for being incredibly happy, determined and full of character.
Currently, there is no specialist treatment available in the UK for Olly’s condition. However, his family have identified a 28-day clinical trial in Mexico through NeuroCytonix, which has shown promising results for another child with the same condition. The treatment has the potential to improve Olly’s independence, communication, mobility and overall quality of life.
To help make this possible, Olly’s family are aiming to raise £40,000 to cover the cost of the treatment and travel. The recent bucket collection, supported by Riley, Olly and the Trust, saw the local community come together in fantastic spirit to contribute towards this goal.
Olly dreams of being more like his older brothers, and this opportunity could bring him one step closer to achieving that. The Trust is incredibly proud to stand alongside the Barker family and our community in supporting such an important cause. We would like to thank everyone who donated and showed their support — your kindness could help make a life-changing difference for Olly and his family.
If you didn’t get the opportunity to contribute to this incredible cause please visit their go fundme page :
Fundraiser by Laura Lord : Help olly go to Mexico for Neurocytonix
